中国儿童保健杂志 ›› 2014, Vol. 22 ›› Issue (9): 961-963.DOI: 10.11852/zgetbjzz2014-22-09-20

• 临床研究与分析 • 上一篇    下一篇

Tourette综合征儿童主观生活质量和社会适应能力的研究

杨雪, 张玲, 于斌   

  1. 青岛市中心医院儿科, 山东 青岛 266042
  • 收稿日期:2014-01-03 出版日期:2014-09-10 发布日期:2014-09-10
  • 作者简介:杨雪(1980-), 女, 山东人, 主治医师, 硕士学位, 主要研究方向为儿童保健、呼吸疾病。

Research on the subjective living-quality and the social adaptive behavior in children with Tourette syndrome

YANG Xue, ZHANG Ling, YU Bin   

  1. Department of Pediatrics,Qingdao Central Hospital,Qingdao,Shandong 266042,China
  • Received:2014-01-03 Online:2014-09-10 Published:2014-09-10

摘要: 目的 分析 Tourette 综合征(Tourette syndrome,TS)儿童的主观生活质量和社会适应能力,为临床治疗提供指导依据。方法 采用儿少主观生活质量问卷(Inventory of Subjective Life Quality,ISLQ)、儿童行为量表(Children Behavior Checklist,CBCL)、儿童适应行为评定量表(Social of Adaptive Behavior,SAB),对112例 TS 儿童( ≥8岁)的主观生活质量和社会适应能力进行对照研究。结果 TS 患儿 ISLQ 中有7个维度得分明显低于对照组(P<0.01);行为问题得分明显高于对照组(P<0.05)。适应能力商数(adaptability quotient,ADQ)低于对照组(P<0.05),其中认知功能、社会/自制两项与对照组差异有高度统计学意义(P<0.001)。结论 TS 儿童的主观生活质量和社会适应能力存在诸多问题,及时进行合理干预,有助于促进 TS儿童身心康复。

关键词: Tourette综合征, 生活质量, 适应能力, 儿童

Abstract: Objective To analysis the subjective living-quality and the social adaptive behavior in children with Tourette syndrome (TS) and to provide guidance for clinical treatment. Methods The subjective living-quality and the social adaptive behavior of 112 TS children (≥8 years old) were measured by means of Inventory of Subjective Life Quality (ISLQ),Children Behavior Checklist (CBCL) and Social of Adaptive Behavior (SAB) scales. Results The 7 aspect scores of ISLQ (in fact,7 aspects of them) in TS children were lower than those in control group (P<0.01).The scores of behavior problems in TS children was higher than that in control group (P<0.05).The ADQ in TS children was lower than that in control group (P<0.05).Particularly the cognitive function and social /self direction were lower than those in control group(P<0.001). Conclusions There are many problems in TS children' subjective living-quality and social adaptive behavior.Appropriate intervention should be given timely to promote the psycho-behavioral rehabilitation of TS children.

Key words: Tourette syndrome, living-quality, adaptive behavior, children

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