关键词: 抽动秽语综合征, 主观生活质量, 儿童

Abstract: Objective To study the subjective quality of life in clinically cured children with Tourette syndrome (TS),and to provide evidence for the long-term intervention of TS. Methods TS group including 129 cases and control group including 129 children completed a general survey and Inventory of Subjective Life Quality (ISLQ),and the case group must finish another ISLQ after cured.Chi square test and T test were used to analyze the data by SPSS 20.0 statistical software. Results 1)Children of the two groups had significant differences on gender,birth weight,family type,feeding status of 4 months after born (P<0.05);The two groups did not have significant differences on age,family income,the father/mother's education level and children's parity (Pˇ0.05).2)The total score of the subjective quality of life in TS group were lower than that in control group (168.08±21.28 vs 155.67±20.51),and the difference was statistically significant (P<0.05).3)After the clinical rehabilitation,the total subjective quality of life,family life,school life and cognitive components were improved in the TS group with significant difference (P<0.05).4)Compared with control group,all aspects of subjective quality of life in clinically cured TS group were still lower,the difference was statistically significant (P<0.05). Conclusions The subjective quality of life in children with TS has improved,but the subjective quality of life in TS patients is still poor after cured compared with normal children.Therefore,consolidation therapy and more attention should be given for the cured TS children in order to improve subjective quality of life

Key words: Tourette syndrome, subjective quality of life, children