关键词: 孤独症谱系障碍, 育儿压力, 儿童

Abstract: Objective To explore parental stress and related factors of children with autism spectrum disorder(ASD),and provide the basis for reducing parental stress and promoting the results of intervention. Methods Parents of ASD children who were first diagnosed in the Department of Child Health Care,Children's Hospital of Fudan University were included in the research as experimental group,parents of children who were first diagnosed as intellectual disability/language disorder and of typical children as control groups.Interview included parental stress index/short form (PSI/SF),self-made general parenting information questionnaire,Developmental Screening Test (DST) was performed for developmental quotient (DQ) of ASD children. Results Most included ASD children were comorbid with developmental delay-a higher proportion of intellectual disability and poor social adaptability than motor abnormality.Parents of ASD children scored higher than control groups in the total score of parenting stress,PCDI domain and DC domain (total score:100.67±15.08 vs 93.19±13.85 vs 82.61±17.68,F=43.85,P<0.05).They also scored higher in PD domain than parents of typical children(33.34±7.07 vs 29.77±7.47,P<0.05),with no statistical difference comparing with parents of children with intellectual disability/language disorder.Increasing nursing time of father and family income,parents with higher education level could help to relieve stress. Conclusions 1) A large number of ASD children are comorbid with developmental delay.Parents of ASD children experience higher stress.2) To increase nursing time of father,father should be guide to participate in the family intervention of ASD children.It is also important for the government and society to invest more funds and education resources for the ASD families for relieving stress and improving the effect of intervention.

Key words: autism spectrum disorder, parental stress, children