关键词: 健康指导, 脑瘫儿童, 家庭, 康复, 生存质量

Abstract: Objective To research the combined effect of health guidance and family care in rehabilitation of children with cerebral palsy (CP),in order to provide reference for improving the therapeutic effect and the life quality in children with CP. Methods A total of 120 children with CP,who had rehabilitation therapy in outpatient rehabilitation from January 2012 to January 2014,were retrospectively enrolled in the present study.All the children with CP were divided into observation group(60 cases ) and control group(60 cases).Children in control group were given routine rehabilitation,observation group developed family education and rehabilitation on the basis of routine rehabilitation.The families emotional response,rehabilitation treatment adherence and therapeutic effect of two groups were compared through the education guidance combined with family rehabilitation.A self-designed questionnaire,Trait Coping Questionnaire (TCSQ) and GMFM88 Term Gross Motor Function Assessment Form were used in this study. Results No statistical differences in positive coping (PC) and negative coping (NC) score of families TCSQ before health education in the two groups (P>0.05).But after health education,there were statistical differences in positive coping (PC) and negative coping (NC) score of families TCSQ,and family rehabilitation treatment adherence (P＜0.05).No significant difference in the evaluation score of the two group of children with CP after the first course of treatment.The observation group got a higher evaluation scores compared with the control group at the end of the second and third course,respectively.After all of the three courses of treatment,statistically significant differences in the total effective rate and the effective rate between the two groups were showed.There was 97% of total effective rate and 25% of effective rate in the observation group,but 86.6% of total effective rate and only 8.3%of effective rate in the control group. Conclusions With the help of combination of healthy guidance and family rehabilitation mode,the rehabilitation treatment compliance can be improved,so that can promote the children rehabilitation effect and improve the quality of life in children with CP.

Key words: health guidance, children with cerebral palsy, family, ehabilitation, life quality