关键词: 肛门直肠畸形, 生存质量, 儿童

Abstract: Objective To investigate quality of life (QOL) of postoperative children with congenital anorectal malformations (ARM),and to provide evidence for developing effective interventions and improve QOL of children with ARM. Methods A total of 100 children who had ARM surgery 2 and 5 years ago were investigated by using the Chinese version of PedsQL^TM4.0 Scale.The scores of QOL were compared between children with ARM and healthy children. Results 1)QOL score of the emotional function among children with ARM aged 2 years old was higher than that of healthy children (P<0.05).QOL scores of the 4 dimensions and total scale among children with ARM aged 5 years old were higher than those of healthy children (P<0.05),the difference of QOL scores in emotional function was most significant.2)QOL self-report scores of children with ARM aged 5 years old were higher than those of caregiver proxy-report (P>0.05).QOL self-report scores of the 4 dimensions of healthy children at the same age were higher than those of caregiver proxy-report (P<0.05).3)QOL scores of the corresponding dimensions among ARM children aged 2 and 5 years old who had bowel disorders were lower than those who had not bowel disorders (P<0.05). Conclusion 1)By reducing psychological pressure and giving more love and care can improve quality of life.In addition,parents pay special attention on the emotional function of their children.2)Bowel disorders have negative impact on QOL of ARM children aged 2 and 5 years old.

Key words: anorectal malformations, quality of life, children