关键词: 1型糖尿病, 生存质量, 父亲参与教养

Abstract: Objective To understand the status of fathers′ participation in parenting in children with type 1 diabetes,and analyze the correlation between the awareness and degree of father′s participation in parenting with the life quality of children. Methods During september and december in 2017,a total of 35 children with type 1 diabetes and their fathers were recruited from a follow-up group of children with type 1 diabetes in grade Ⅲ-a hospital in Fujian province by convenience sampling method.The Iventory of Father Involvement and Diabetes Specific Quality of Life Scale were used. Results The total score of father′s participation in parenting was 146.09±19.46.The sorting of each dimension′s ratio was encouragement and praise, support and planning, discipline and restraint, and daily care from high to low.The total score of diabetes specific quality of life was 61.28±17.42.The sorting of each dimension′s ratio was psychology,society,physiology,therapy from high to low.Univariate analysis showed that the score of father′s support and planning in excellent academic performance was higher than score of average academic performance(F=3.667,P<0.05).The total scores(t=-3.102) and the scores of encouragement and praise(t=-3.861),support and planning of father′s participation in parenting(t=-23.049) were lower than those of the norm (n=745),but the scores of governance and constraints (t=7.150) were higher than those of the norm (n=745)(P<0.05).There was no correlation between the father′s participation in parenting and the children′s quality of life (P>0.05). Conclusion The awareness and degree of father′s participation in parenting about children with type 1 diabetes is better, especially in encouraging and praise and support and planning, but the level of participation in daily care needs to be further strengthened,and avoiding excessive restraint meanwhile.

Key words: diabetes,type 1, quality of life, fathers′ participation in parenting