Abstract: Objective To explore the application effect of long-term management mode based on Internet technology in children with intractable epilepsy. Methods From February 2019 to April 2020, a total of 81 children with intractable epilepsy were enrolled in this study, and were randomly divided into study group (n=41) and control group (n=40).Long-term management mode based on Internet technology was implemented for the study group, whilethe control group was given routine management for one year. The compliance behavior, seizure frequency during the management period and quality of life before and after management were compared between the two groups. Results There were significant differences in the distribution of compliance behaviors of diet, medication, follow-up and emotional management during the management period between the two groups (Z=7.400, 4.830, 5.014, 5.694, P<0.05). The complete compliance rates of diet, medication, follow-up and emotional management during the management period in the study group were 82.93%, 87.80%, 80.49% and 75.61%, significantly higher than those of 55.00%, 67.50%, 57.50% and 50.00% in the control group (χ²=7.125, 4.761, 4.889, 5.420, P＜0.05). The number of epileptic seizures during the management period in the study group was (16.83±2.59) times/year, lower than that of (25.35±4.74) times/year in the control group (t=10.072, P＜0.05). After management, the scores of quality of life in terms of fear of attack, experience, emotion and social function of the two groups were higher than those before management (P＜0.05), which were higher in the study group than those in the control group (t=9.453, 8.792, 7.080, 9.558, P＜0.05). Conclusion The application of long-term management mode based on Internet technology for children with intractable epilepsy can improve their compliance behavior, control seizures, and improve their quality of life.

Key words: Internet technology, long-term management mode, intractable epilepsy, children

摘要： 目的 探讨基于互联网技术的长程管理模式在难治性癫痫患儿中的应用效果,以期为此类患儿的管理改进提供参考。方法 选取徐州市儿童医院2019年2月—2020年4月收治的难治性癫痫患儿81例,将其随机分为研究组(41例)与对照组(40例)。研究组实施基于互联网技术的长程管理模式,对照组实施常规管理,管理时间均为1年。对比两组管理期间遵医行为、癫痫发作次数和管理前后生活质量。结果 研究组与对照组管理期间饮食(Z=7.400)、用药(Z=4.830)、复查(Z=5.014)、情绪管理(Z=5.694)遵医行为分布差异均有统计学意义(P＜0.05),且研究组饮食、用药、复查、情绪管理完全遵医率分别为82.93%、87.80%、80.49%和75.61%,均高于对照组的55.00%、67.50%、57.50%、50.00%(χ²值分别为7.125、4.761、4.889、5.420,P＜0.05);研究组管理期间癫痫发作次数为(16.83±2.59)次/年,少于对照组的(25.35±4.74)次/年(t=10.072,P＜0.05);管理后两组担心发作、经历、情绪及社会功能方面的生活质量评分均高于管理前(P＜0.05),管理后研究组上述方面的生活质量评分均高于对照组(t=9.453、8.792、7.080、9.558,P＜0.05)。结论 对难治性癫痫患儿应用基于互联网技术的长程管理模式能够改善患儿遵医行为、控制癫痫发作,还可提高患儿的生活质量。

关键词: 互联网技术, 长程管理模式, 难治性癫痫, 儿童