Abstract: Objective To research the combined effect of health guidance and family care in rehabilitation of children with cerebral palsy (CP),in order to provide reference for improving the therapeutic effect and the life quality in children with CP. Methods A total of 120 children with CP,who had rehabilitation therapy in outpatient rehabilitation from January 2012 to January 2014,were retrospectively enrolled in the present study.All the children with CP were divided into observation group(60 cases ) and control group(60 cases).Children in control group were given routine rehabilitation,observation group developed family education and rehabilitation on the basis of routine rehabilitation.The families emotional response,rehabilitation treatment adherence and therapeutic effect of two groups were compared through the education guidance combined with family rehabilitation.A self-designed questionnaire,Trait Coping Questionnaire (TCSQ) and GMFM88 Term Gross Motor Function Assessment Form were used in this study. Results No statistical differences in positive coping (PC) and negative coping (NC) score of families TCSQ before health education in the two groups (P>0.05).But after health education,there were statistical differences in positive coping (PC) and negative coping (NC) score of families TCSQ,and family rehabilitation treatment adherence (P＜0.05).No significant difference in the evaluation score of the two group of children with CP after the first course of treatment.The observation group got a higher evaluation scores compared with the control group at the end of the second and third course,respectively.After all of the three courses of treatment,statistically significant differences in the total effective rate and the effective rate between the two groups were showed.There was 97% of total effective rate and 25% of effective rate in the observation group,but 86.6% of total effective rate and only 8.3%of effective rate in the control group. Conclusions With the help of combination of healthy guidance and family rehabilitation mode,the rehabilitation treatment compliance can be improved,so that can promote the children rehabilitation effect and improve the quality of life in children with CP.

Key words: health guidance, children with cerebral palsy, family, ehabilitation, life quality

摘要： 目的 探讨教育指导与家庭康复相结合对脑瘫(cerebral palsy,CP)儿童康复的影响,为提高患儿治疗效果及生存质量提供参考。方法 选择2012年1月-2014年1月在门诊儿童康复科康复治疗的CP儿童120例,分观察组和对照组各60例,对照组按常规康复治疗,观察组在此基础上制定家庭教育康复模式。分别采用自行设计调查问卷表、《特质应对方式问卷表(TCSQ)》和《GMFM88项粗大运动功能评定表》,通过教育指导与家庭康复相结合,比较两组家属的情绪应对、康复治疗依从性及治疗效果。结果 教育前两组家属TCSQ的积极应对(PC)和消极应对(NC)评分比较差异均无统计学意义(P均>0.05),教育后两组家属TCSQ的PC评分和NC评分比较、家庭康复治疗的依从性比较差异均有统计学意义(P均<0.05);两组CP儿童第1个疗程治疗结束后测评得差异不明显;观察组在第2个、第3 个疗程结束后测评分别得分比对照组均明显提高(P均＜0.05);3个疗程治疗结束后,观察组总有效率为97%(显效率占25%),对照组总有效率为86.6%(显效率仅占8.3%),组间比较差异有统计学意义(P＜0.05)。结论 用健康指导与家庭康复相结合模式,可提高康复治疗依从性,促进患儿康复效果,改善CP儿童生存的质量。

关键词: 健康指导, 脑瘫儿童, 家庭, 康复, 生存质量